Inaugural South African HHT Conference
We are thrilled to announce HHT Horizons, South Africa’s first Hereditary Haemorrhagic Telangiectasia (HHT) conference, organised by BLOODSA and taking place on Friday, 19 September 2025 at the Century City Conference Centre in Cape Town.
This landmark event brings together local and international experts, patients, and healthcare professionals across disciplines to build a national network based on the CureHHT framework and share cutting-edge knowledge in HHT care. The conference is endorsed by the international foundation, CureHHT, and the South African Clinical Haematology Society (SACHAS).
About CureHHT
CureHHT is the leading global organisation dedicated to finding a cure for Hereditary Haemorrhagic Telangiectasia. Based in the United States, CureHHT supports research, education, advocacy, and the development of HHT Centres of Excellence around the world. Their mission is to ensure that every HHT patient is properly diagnosed and receives expert care. Under the leadership of CEO Marianne Clancy, who will be joining us, CureHHT has spearheaded international collaborations to expand access to HHT expertise and improve patient outcomes worldwide.
Speakers
Our International Guest Speakers who are experts in HHT include:
- Dr Hans-Jurgen Mager (Netherlands) – Pulmonologist, Chair of the Global Research & Medical Advisory Board, Cure HHT
- Dr Marie Faughnan (Canada) – Pulmonologist, Director, Toronto HHT Centre of Excellence & Scientific Director, Cure HHT
- Prof Mark Chesnutt (USA) – Pulmonologist, Director, Pacific Northwest HHT Center, Oregon Health & Science University
- Dr Julie de Tristan (Germany) – Otolarygnologist with HHT expertise
- Dr Marco Post (Netherlands) – Cardiologist with HHT focus
Agenda
(Exact topics subject to confirmation)
- 13:00–15:00 Parallel Sessions
- Doctors Only: Patient Case Discussions & Setting Up an HHT Treatment Centre
- Patients & Families: Meet & Greet Session
- 15:00–16:00 Refreshment Break
- 16:00–18:00 Presentations:
- Managing Iron Deficiency Anaemia in HHT
- Screening for AVMs
- Pulmonary AVMs: Management and Complications
- ENT: Topical Interventions in Epistaxis
- High-output Heart Failure in HHT
Join us as we shape the future of HHT care in South Africa!
